There is an extensive amount of information available on the internet about Motor Neurone Disease (MND). It is important to be mindful that anyone is able to publish information online and not all of it will be factual or scientifically proven. Through MND Australia, we can provide the following resources to help you become accurately informed about MND. If you are concerned or confronted by the information you read please do not hesitate to contact the office and speak to one of our MND Advisors.

For more information you can download the following resources:

Motor Neurone Disease Some Facts (PDF 396kb)

Motor Neurone Disease More Facts (PDF 582kb)

MND Australia Background Information on Motor Neurone Disease April 2019

Breathing and motor neurone disease: what you can do (EB6) :Tips to help you manage respiratory symptoms and stay more comfortable (2 pages) (164 kB)

Breathing and motor neurone disease: medication and non-invasive ventilation (EB7) :An overview of using non-invasive ventilation and medications to manage breathlessness (2 pages) (196 kB)

Facts and Figures:

  • MND is a progressive, degenerative neurological condition

  • MND can strike anyone of adult age

  • There is currently no known cure and no effective treatment for MND

  • Each day in Australia two people die from MND

  • Each day in Australia two people are diagnosed with MND

  • People with MND progressively lose the use of their limbs and ability to speak, swallow and breathe, whilst their mind and senses usually remain intact

  • Average life expectancy is 2.5 years*

  • More than 2,000 people have MND in Australia of whom 60% are male and 40% are female*

  • Approximately 150 people are living with MND in Western Australia

  • Average time from onset to confirmation of diagnosis is 10 to 18 months*

  • Prevalence of MND in 2015 was 8.7 per 100,000 people or 1 per 11,434 Australians*

  • Approximately 58% of people with MND are under the age of 65*

  • The total cost of MND in Australia was $2.37 billion in 2015. This equates to $1.1 million per person*

  • For every person diagnosed with MND it is estimated that a further 14 members of their family and their friends will live with the effect of MND forever

*Source: Deloitte Access Economics report Economic Analysis of MND in Australia